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Awareness

Awareness

I have been accused by many of focusing too much on my children’s disease, of creating a self-fulfilling prophecy of weakness, inability, and demise in them, and of assuming an identity solely centered around being a mother of disabled children. Today, July 27, 2019,...
The Whoopie Pie Kind of Mom

The Whoopie Pie Kind of Mom

My mom is amazing. She is generous, kind, loving, dedicated, and a million other inspirational things. She goes out of her way, deprives herself of sleep, and extends herself to great lengths to make sure that a lot of other people around her, including her kids feel...

A Non-Minnesotan Request for Help

As you may have heard, we’re in it for the long haul here at the ICU. Due to this becoming our new normal, and needing to try to maintain some of our old normal for these kiddos and our family, to whatever degree possible, I am doing the thing that I am terrible...
A Blessed Birthday

A Blessed Birthday

A couple of days ago, I celebrated the big 3-9. I knew quite a while ago that while this year’s aging was bound to be memorable, and my suspicions were quite spot-on, as it turned out to be both a blessed and a blessed day (see my earlier post on this...