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This Is Terrible. Keep Going.

This Is Terrible. Keep Going.

Late last night we got some preliminary results of the MRI: no tumor, no aneurysm, no bleeding, no stroke, no surgical damage, no traumatic brain injury (the last three of which we already pretty much knew.) The only apparent thing was what appears to be an infection...

No Sprinkles On This Donut

I couldn’t go all the way back into the room as they prepped G for the “big donut” (without sprinkles on it, as he told me.) Instead, I directed them from about 15 feet away, saying things like, “No, you can’t start this until he’s fully asleep or he will freak out,”...
Two Truths and a Lie, Oregon Trail Style

Two Truths and a Lie, Oregon Trail Style

If you were in elementary or junior high school sometime in the 80’s, there is a pretty strong likelihood that you played one of the most intense games ever (or at least of its time,) “The Oregon Trail,” that would leave you dying instantly from some...
Awareness

Awareness

I have been accused by many of focusing too much on my children’s disease, of creating a self-fulfilling prophecy of weakness, inability, and demise in them, and of assuming an identity solely centered around being a mother of disabled children. Today, July 27, 2019,...
The Whoopie Pie Kind of Mom

The Whoopie Pie Kind of Mom

My mom is amazing. She is generous, kind, loving, dedicated, and a million other inspirational things. She goes out of her way, deprives herself of sleep, and extends herself to great lengths to make sure that a lot of other people around her, including her kids feel...