by Liz | Feb 20, 2020 | Uncategorized
Nine months ago today, a new life was conceived. Nine months ago today, I began my day by walking my son into an operating room, for a pseudo-routine jaw surgery, as much as any surgery can be routine for somebody with myotonic muscular dystrophy. By the end of that...
by Liz | Nov 30, 2019 | Uncategorized
It’s 1:49 in the morning. I am keeping watch over my son while he sleeps to ensure nothing happens to compromise his breathing and/or health. (These duties are shared by the nurse, who so kindly agreed to join us to travel back to my childhood home in order to...
by Liz | Nov 5, 2019 | Uncategorized
Today, but a sheer stroke of luck, I had a break in my schedule. Instead of filling it with an appointment request, I took the time to go to a yoga class led by one of my favorite yogis, a class I haven’t been able to attend in probably close to a year, due to work...
by Liz | Aug 23, 2019 | Uncategorized
For over three months, I have looked at that white board in his room at the “Anticipated Discharge Date.” Blank. Empty. No ideas. (Save for Gianna who wrote a while back, “We don’t know.”) No end in sight. No clue when we would actually get out of here. Well, that has...
by Liz | Aug 12, 2019 | Uncategorized
For those of you who don’t really know me (and those that do but want a reminder), here are four important things to know about me…. I don’t take “I don’t know” or “Maybe” or “I don’t have an answer”...
by Liz | Aug 7, 2019 | Uncategorized
Late last night we got some preliminary results of the MRI: no tumor, no aneurysm, no bleeding, no stroke, no surgical damage, no traumatic brain injury (the last three of which we already pretty much knew.) The only apparent thing was what appears to be an infection...
Recent Comments