The Coronavirus Slide

About five minutes before Gianna shot this video of our spontaneous dancing to the Cha Cha Slide, (which I’m clearly not very skilled at, at least when there’s a cat bowl behind me,) I was sobbing in my car, something that I have done more times than I can count the...

Life Imitates Birth, As Per Usual

Nine months ago today, a new life was conceived. Nine months ago today, I began my day by walking my son into an operating room, for a pseudo-routine jaw surgery, as much as any surgery can be routine for somebody with myotonic muscular dystrophy. By the end of that...
Home is Where Your Nest Is

Home is Where Your Nest Is

It’s 1:49 in the morning. I am keeping watch over my son while he sleeps to ensure nothing happens to compromise his breathing and/or health. (These duties are shared by the nurse, who so kindly agreed to join us to travel back to my childhood home in order to...
Ooh Child…

Ooh Child…

Today, but a sheer stroke of luck, I had a break in my schedule. Instead of filling it with an appointment request, I took the time to go to a yoga class led by one of my favorite yogis, a class I haven’t been able to attend in probably close to a year, due to work...
The Light at the End of the ICU Tunnel!

The Light at the End of the ICU Tunnel!

For over three months, I have looked at that white board in his room at the “Anticipated Discharge Date.” Blank. Empty. No ideas. (Save for Gianna who wrote a while back, “We don’t know.”) No end in sight. No clue when we would actually get out of here. Well, that has...
Four Things to Know

Four Things to Know

For those of you who don’t really know me (and those that do but want a reminder), here are four important things to know about me…. I don’t take “I don’t know” or “Maybe” or “I don’t have an answer”...